Ardent Cerebrations: Musings of Lupus Survivors!

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Ellen S

Ellen S's Blog (9)

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Intracranial Hypertension, Pseudotumor Cerebri - Journal?

Intracranial hypertension (IH) is a rare condition in which there are many, many questions and few answers. It is often mis-diagnosed and outright missed by many physicians, but it can be a part of the Lupus/autoimmune experience. Intracranial hypertension - the definition: *Intra - inside *Cranial - the skull *Hyper - too much *Tension - pressure *Intracranial hypertension is the condition that results in increased pressure of the fluid that surrounds the brain and spina… Continue

Added by Ellen S on September 2, 2009 at 3:22pm — No Comments

Power tools for Twitter users - Free webinar!

Join Angie and some of the rest of AC's members, in tweeting about Lupus for global awareness..... "Twitter Power Tools for Health Activists*" is the second in a series of webinars designed to help you make the most of your Twitter account. It is scheduled to take place Wednesday, June 3rd at Noon Eastern Time. During this 45 minute presentation, WEGO Health will give you a guided tour of some of the most useful third party twitter applications to help you save time, reach more tweeps, and tak… Continue

Added by Ellen S on May 30, 2009 at 6:00pm — 1 Comment

Twitter for health activists - a free webinar!

In our ongoing effort to empower Health Activists, WEGO Health will be hosting a “Twitter for Health Activists” webinar event this Monday, April 6th at 8PM. We all know that Twitter is taking the web by storm. In fact there are now over 6 million users on Twitter. Whether you're a Twitter veteran or simply a curious outsider, as a Health Activist you have the unique opportunity to use Twitter to further connect, s… Continue

Added by Ellen S on April 4, 2009 at 11:30pm — 2 Comments

Lupus - a wolf in sheep's clothing

"The wolf" is sneaky. It's tricky. It hides. It pretends. It's ferocious. It kills. Lupus, "the wolf", is a disease often resulting in Migraine and other headache disorders. When living my early years in Oregon, spending time in the wilderness, I happened upon wolves in the wild. I've looked at them in curiosity and excitement, but never fright. For the most part, wolves would prefer not to be around people... not to be observed. I never looked at a wolf as something to be afraid of. Perhaps t… Continue

Added by Ellen S on January 22, 2009 at 5:06pm — 1 Comment

"T-Reg Mary" and her gift of life

No, not "Typhoid Mary", spreading death and disease, but an unnamed woman I dubbed "T-Reg Mary" because she developed helpful antibodies and shared them with the world. I will edit this later, but wanted you all to see it as I received it. If you aren't familiar with Killer T's (soldiers with weapons) and Regulatory T cells (generals of the army) and how they work in autoimmune diseases, Here is a link to my blog post explaining these cells:… Continue

Added by Ellen S on January 22, 2009 at 4:30pm — 1 Comment

Migraine and chronic pain management: tips and tricks

My friends, Living with Lupus, Migraine and chronic pain is difficult. That doesn't mean life comes to a halt. We can do this, and even do it well! Our family's success depends upon planning and teaching and baby steps. You really can do this... Originally from my WEGO Health Migraine blog post here and another articl… Continue

Added by Ellen S on January 22, 2009 at 12:00am — 2 Comments

Pain preventive medicine- among the drugs that deplete CoQ10 / Ubiquinol

Coenzyme Q10 (CoQ10 aka Ubiquinone) and Ubiquinol (CoQH-10 or CoQH2-10) supplementation has been the topic of increasing conversation within Migraine communities, and it should be in other communities as well. The reasons probably vary, but its ease of acquisition and use, cost, as well as its reputation as a natural supplement with fewer side-effects than standard Migraine and chronic pain preventives, seems to be driving the interest. But there is much more... This article has been modified f… Continue

Added by Ellen S on January 22, 2009 at 12:00am — 1 Comment

Opioid side-effects: Naltrexone secrets for chronic pain patients

From a WEGO Health Migraine blog post here. The story of a new drug FDA approved to treat constipation resulting from use of opioid pain relievers such as codeine, oxycontin, and morphine, begins with a compassionate University of Chicago pharmacologist who wanted to help a terminally ill friend. Leon Goldberg, MD, PhD was struck… Continue

Added by Ellen S on January 21, 2009 at 12:00pm — 2 Comments

Hughes Disease and recent research revelations

A Migraine blog post from my WEGO Health blog- A recent study published in the journal Neurology is getting a lot of media attention, but a personal experience made me wonder whether r… Continue

Added by Ellen S on January 20, 2009 at 12:00am — 1 Comment

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