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APSFA Faces of APS - The APSFA Needs YOUR Help!

Faces of APS - The APSFA Needs YOUR Help! The APSFA is looking for people to submit their photos for "The Faces of APS". Details in the pdf linked below. Please help us bring awareness to this disease to main stream media! Deadline: January 4, 2010 http://www.apsfa.org/docs/Faces%20of%20APS.pdf Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot… Continue

Added by APSFA on December 6, 2009 at 1:15pm — No Comments

Angie ImmuPharma PLC: Encouraging Results Seen with LUPUZOR(TM) in SLE

ImmuPharma PLC: Encouraging Final Phase IIb Results Seen with LUPUZOR(TM) in Systemic Lupus Erythematosus ~ Greatest Benefits Seen in Patients with Moderate to Severe Systemic Lupus Erythematosus ~ LONDON, Nov 19, 2009 (BUSINESS WIRE) -- ImmuPharma PLC (LSE:IMM) the specialist discovery and development pharmaceutical company is pleased to announce today the final results from a Phase IIb trial of LUPUZOR(TM) in active patients with Systemic Lupus Erythematosus (SLE). Lupuzor(TM) administ… Continue

Added by Angie on November 29, 2009 at 5:00pm — No Comments

Maria Beatle Heir Making Good on Lupus "Help"

With the recent passing of Lucy Cook, the inspiration behind the Beatles song "Lucy In The Sky With Diamonds" and fellow lupus patient, there has been news that John Lennon's son, Julian Lennon, will be teaming up with songwriter James Scott Cook on behalf of raising lupus awareness here in the Us and the UK. The following LFA article is listed below that tells more about the artists and their commitment to not only this friend, but to also offer her another legacy to have left with us.… Continue

Added by Maria on November 24, 2009 at 5:09pm — No Comments

Ruste Jill Vallerie Here I go again

My partner Vee came home Nov. 6 2 find me unconscious. I was scheduled 2 go 2 hospital 4 depression & found out I had a stroke. A stroke! THEN I learned I had a defective heart valve THEN was told a pain stimulator that was implanted in my back would have 2 b removed in order to have an MRI done of my brain 2 determine the cause of my stroke. Don't get me wrong, I'm very grateful only my speech was affected by the stoke. It could hsve been so much worse & what's another surgery, I've had… Continue

Added by Ruste Jill Vallerie on November 24, 2009 at 12:28pm — 2 Comments

APSFA FALL/WINTER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is Available

The FALL/WINTER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol15FallWinter2009.pdf The next volume will be coming out in late Winter, early Spring, 2010. Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that… Continue

Added by APSFA on November 21, 2009 at 12:58pm — 2 Comments

APSFA *Exclusive* 2009 APSFA Holiday Ornament

Our EXCLUSIVE holiday snowflake ornament is now available for purchase in our Cafepress store. This is the 4th in the series and each one is unique! We picked the snowflake to be the symbol on this special ornament because like there are no two snowflakes that are alike, no two APS patients are alike! Purchase this ornament:… Continue

Added by APSFA on November 16, 2009 at 9:12pm — No Comments

APSFA 2009 APSFA Giving Tree

We are excited to announce the arrival of our 4th Annual Holiday Giving Tree! This tree holds a special meaning for the members of the APS Foundation of America, Inc and the community it serves. Since the Giving Tree has been such a big success in the past, we've made it an annual tradition. How the tree works: When you make a donation using the chart below the tree, you get to chose an ornament or… Continue

Added by APSFA on November 15, 2009 at 12:24pm — No Comments

APSFA `Wipeout' TV show player with rare condition dies

`Wipeout' TV show player with rare condition dies Thu Nov 12, 7:03 pm ET

LOS ANGELES – A contestant who was hospitalized after competing briefly on the game show "Wipeout" died two weeks later of a stroke apparently caused by a rare condition, his father said. Tom Sparks, 33, was participating in th… Continue

Added by APSFA on November 13, 2009 at 4:57pm — 2 Comments

Ruste Jill Vallerie How I look now.

Well, after reading thru old blog & comments I finally decided 2 post my real photo on my twitter & facebook pages. This was a HUGE step 4 me. 2 finally say "This is me, this is what I look like and I am still beautiful, just different. We are all beautiful and need 2 B proud of who we r. After all we've been thru, we have developed a beauty and inner strength that is rare and so wonderfully lovely. I wish u peace and grace. Ruste Continue

Added by Ruste Jill Vallerie on November 3, 2009 at 4:47pm — 2 Comments

Angie GSK and HGS Press Release: Successful Second Phase 3 Trial for Lupus Drug Benlysta

GlaxoSmithKline and Human Genome Sciences announce positive results in second of two phase 3 trials of Benlysta in systemic lupus erythematosus

  • Benlysta (belimumab) 10 mg/kg plus standard of care met its primary efficacy endpoint by achieving a statistically significant improvement in patient response rate versus placebo plus standard of care at Week 52 in BLISS-76
  • Primary efficacy endpoint met in two pivotal Phase 3 trials, as
… Continue

Added by Angie on November 2, 2009 at 1:28pm — No Comments

Margaret Auchampaugh Lupus Stamp I made. Enjoy!

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Added by Margaret Auchampaugh on October 28, 2009 at 1:43pm — 1 Comment

APSFA 2009 H1N1 Flu (referred to as “swine flu” early on) and Seasonal Flu Information for People with Inflammatory Arthritis or Rheumatic Disease

2009 H1N1 Flu (referred to as “swine flu” early on) and Seasonal Flu Information for People with Inflammatory Arthritis or Rheumatic Disease October 15, 2009, 11:00 AM ET How does arthritis affect how I respond to the flu? People with certain types of arthritis, called inflammatory or systemic arthritis or autoimmune rheumatic disease, have a higher risk of getting flu-related complications, such as pneumonia. Inflammatory arthritis affects the immune system which controls how we… Continue

Added by APSFA on October 23, 2009 at 6:09pm — 2 Comments

3sisters PhysiciansforPatients - Lupus

Stop by this community and see what they are up to. Continue

Added by 3sisters on October 19, 2009 at 7:30pm — 2 Comments

APSFA 13th International Congress on Antiphospholipid Antibodies

13th International Congress on Antiphospholipid Antibodies "Antiphospholipid by the Beach" When: April 13-16, 2010 Four days of the most up-to-date evidence-based medicine and state-of-the-art scientific sessions on Antiphospholipid Antibodies and the Antiphospholipid syndrome. Participants included: rheumatologists, hematologists, OB-Gyn specialists, neurologists, dermatologists, cardiologists, pathologists, researchers, laboratory scientists and clinicians dealing with Antipho… Continue

Added by APSFA on October 18, 2009 at 2:00pm — 1 Comment

Amy Domestico Chana Garcia, an ovarian cancer survivor, who works for AOL Black Voices,

Chana Garcia, an ovarian cancer survivor, who works for AOL Black Voices, The Root.com, and Essence, talks about her blog, black gyrl cancer slayer, and Dr. Christina S. Chu talks about clinical trials for the evaluation of novel chemotherapies and immunotherapies for gynecologic malignancies. http://budurl.com/cancerslayer1009 Continue

Added by Amy Domestico on October 10, 2009 at 1:21pm — 1 Comment

cookie Work Disability / SSDI / Health Insurance

http://www.lupus.org/webmodules/webarticlesnet/templates/new_communitywebchats.aspx?articleid=517&zoneid=93 Continue

Added by cookie on October 7, 2009 at 2:31pm — No Comments

Ruste Jill Vallerie New & blue but I'll make it through

I'm new here, so if I stumble a bit, forgive me. I was just diagnosed a couple weeks ago so my head is full of many thoughts. However, for me the biggest suprise is that I just about had to die to get a diagnosis. I've been treated for severe, cronic depression for many years now but for the last 8 or 9 years the depression seemed far more resistive to treatment. Specificly, fatigue overtook me. The more tired I became, the more drastic the treatment. Frankly, in the last 2 years I have gone thr… Continue

Added by Ruste Jill Vallerie on October 6, 2009 at 10:33am — 8 Comments

3sisters NP-SLE or MS? The Neurological Challenges of an Overlap Girl

After a summer of increasingly bizarre, alarming and frustrating neurological signs and symptoms, I found myself in the ER, as I thought that I had been experiencing TIA's. No clots were detected on the CAT scan, which is good, right? Read on. As it would turn out, the neuro issues ensued and I went to my PCP twice in 2 weeks. My PCP said that I had 'scattered neurological signs' and she talked about the possibility of me having either MS or CNS Lupus. My doctor warned me, “Many people’s MR… Continue

Added by 3sisters on October 3, 2009 at 9:30am — No Comments

Maria Watch the bouncing ball...

In my 'younger days' (I'm 46, but talk like I'm 90-just bear with me), those ups and downs were exciting because I knew I would bounce back. These days, there's a little less bounce in this gal - physically and emotionally. Aging is only one part of that, though. Living with a condition that is so full of surprises all it's own is a whole 'nother ballgame. I think that the constant guardedness that I feel in monitoring my flares hampers my ability to be more emotionally ready to handle life in g… Continue

Added by Maria on September 22, 2009 at 2:24pm — No Comments

Angie Have you taken Clonazepam or Klonopin? Did it help you?

ACCORDING TO THIS SNIPPET FROM WIKIPEDIA, KLONOPIN IS INDICATED FOR MANY OF CURRENT MY PROBLEMS. LOSING COVERAGE BACK IN 2004 DIDN'T KILL ME BUT UNDERMINED QUALITY OF MY LIFE. AT $60-90 A MONTH I COULDN'T AFFORD MAINTAIN USAGE. LIKE ME MANY LUPUS/MS PATIENTS HAVE USED IT WITH SOME SUCCESS FOR FOR MANY OF THE INDICATIONS BELOW. I AM HOPING SPLURGING ON A MONTHS SUPPLY MIGHT HELP ME GET THROUGH THIS STRESSFUL RELOCATION. RLS AND ANXIETY HAVE BEEN BACK. EVEN WHEN I DO FAKK ASLEEP, IT NEVER LAST… Continue

Added by Angie on September 18, 2009 at 10:00pm — 1 Comment

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