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Ruste Jill Vallerie
- Female
- Muncie, IN
- United States
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- Lupus Bloggers (3)
- Discussions (1)
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Ruste Jill Vallerie's Discussions
Confusing Depression and Lupus
I'm new here, so if I stumble a bit, forgive me. I was just diagnosed a couple weeks ago so my head is full of many thoughts. However, for me the biggest suprise is that I just about had to die to ge…
Tagged: depressed, depression
Started Oct 6
Ruste Jill Vallerie's Page
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Latest Activity
I couldn't have said it better than Maria. A decade ago I was angry when doctors went 2 years before dx my SLE. Now I realize they just had very little knowledge themselves. I am going through similar scenario now with the NPSLE/APS problems. Slowly…
I'm so sorry to hear you're having to go through all that. I can't offer you anything other than my well wishes and hope for immediate support from your doctor. How scary. Yes, you are a strong woman who is definitely being tested!
What it takes fo…
My partner Vee came home Nov. 6 2 find me unconscious. I was scheduled 2 go 2 hospital 4 depression & found out I had a stroke. A stroke! THEN I learned I had a defective heart valve THEN was told a pain stimulator that was implanted in my back woul…
good for you - i am working on this one...thanks for the "push"
Amen Ruste. YOU are BEAUTIFUL! We are BEAUTIFUL! Glad you are sharing your beautiful smile with us!
I am so glad. Keep sharing. I believe sharing even the smallest details of our lives with each other makes our fellow survivors feel less lonely.
BTW, thank you so much 4 posting my blog on your facebook page. Not only did it give me a much needed boost of confidence, it made me so pleased that I might b able 2 help someone else. I'm so very sorry I forgot to mention this earlier.
Well, after reading thru old blog & comments I finally decided 2 post my real photo on my twitter & facebook pages. This was a HUGE step 4 me. 2 finally say "This is me, this is what I look like and I am still beautiful, just different.
We are all…
Thanx 4 ur encouragement. I've been in the hospital & then had flu but pulling thru now. I will surely continue 2 write & share.
Thank you so much for sharing. This is the kind of honest and real stories I created this network for. A place for free expression of survivors in our own words. I was really touched by your frankness as well as the candid comments you inspired from…
Profile Information
- Member classification:
- Patient
- Patient Diagnosis:
- Lupus, Other
- If 'Other' name below:
- Inerstisal cyctitus
- Diagnosis Date:
- September 23, 2009
- Symptoms/Secondary Conditions:
- Joint Pain, Depression/Anxiety, Acid-Reflux/GERD, Chronic Constipation/IBS, Chronic UTI, Candidiasis/Thrush, Mouth Ulcers, Rashes, Chronic Fatigue, Seizures, Brain Fog, Neuropsychiatric Deficits, Pleurisy, Pneumonia, Hemolytic Anemia/Thrombocytopenia, Other
- If 'Other' name below:
- Kidney infections, bladder failiur, lung weakness
- Mobility status:
- Bed-ridden, Use cane, Use power chair/scooter (shopping), Walk without assistance
- What is your racial ancestry?
- Caucasian/European Descent
- Family Status:
- Married
- Employment Status:
- Not employed
- Disability Status:
- Approved for SSD or SSI
- In relationship to disease, how important is spirituality?
- I believe spirituality is important component of overall health/healing, I am spiritual but not religious, I am religious participating member of organized religious institution, I practice my faith religiously but independently
- Faith/Religion/Philosophy
- Christianity
- Have you or loved one experianced life threatening event due to disease or complication (eg. medication).
- Yes
- Please share a brief account of the life-threatening event. (Your answer is optional, but it is greatly appreciated!)
- Multiple infections that have lead to long hospitalizations.
In 2003 I went through 13 surgeries. I developed an imfection in 7 of those.
- What are your Musings? Share some of your passionate thoughts! Your intellectual pursuits,professions and obsessions...
- I am a lesbian who has been with my patient, loving, incredable partner Vee for 10 yrs. I am a retired professional artist who now paints and woodcarves for pleasure. I love reading, mathmatics (I am right & left brained), the arts, theology, Broadway plays, Lutheran potluck dinners,.learning, learning & learning. Most of all I am a follower and student of Jesus but respect all forms of spirituality or lack thereof. My passions are my partner, my children & grandchildren, animal rights, social justice, and striving to be a blessing or a moment of grace to all I come in contact with.
- Share whatever you like...
- I have a 4lb yorkie (Agador Sparticus) & a precious pom (Sanford Eugene Michael) and my loyal friend, my persian cat (Israel Cully Randolph Davenport) & yes I'm one of those gals who dresses my dogs. I know it's silly, but I just can't help it.
I learned how to read music at age three, and I play 6 differnt instruments.
I try to stand up for justice for all people.
I paint, carve, weave, sculpt, metalwork, etc., etc.'
Favorite quotes:
"I will never know regret, knowing no majic can ever set free, that part of you, that is part of me."
"I'm never down. I'm either up, or getting up."
"Every time you turn around, there you are." Kurt Vonnegut Jr.
- Link us to your Websites, Blogs and Social Networking Profiles
- http://twitter.com/rustevee
Ruste Jill Vallerie's Photos
Ruste Jill Vallerie's Blog
Here I go again
My partner Vee came home Nov. 6 2 find me unconscious. I was scheduled 2 go 2 hospital 4 depression & found out I had a stroke. A stroke! THEN I learned I had a defective heart valve THEN was told a pain stimulator that was implanted in my back would have 2 b removed in order to have an MRI done of my brain 2 determine the cause of my stroke. Don't get me wrong, I'm very grateful only my speech was affected by the stoke. It could hsve been so much worse & what's another surgery, I've had… Continue
Posted on November 24, 2009 at 12:28pm — 2 Comments
How I look now.
Well, after reading thru old blog & comments I finally decided 2 post my real photo on my twitter & facebook pages. This was a HUGE step 4 me. 2 finally say "This is me, this is what I look like and I am still beautiful, just different.
We are all beautiful and need 2 B proud of who we r. After all we've been thru, we have developed a beauty and inner strength that is rare and so wonderfully lovely.
I wish u peace and grace.
Ruste
We are all beautiful and need 2 B proud of who we r. After all we've been thru, we have developed a beauty and inner strength that is rare and so wonderfully lovely.
I wish u peace and grace.
Ruste
Posted on November 3, 2009 at 4:47pm — 2 Comments
New & blue but I'll make it through
I'm new here, so if I stumble a bit, forgive me. I was just diagnosed a couple weeks ago so my head is full of many thoughts. However, for me the biggest suprise is that I just about had to die to get a diagnosis. I've been treated for severe, cronic depression for many years now but for the last 8 or 9 years the depression seemed far more resistive to treatment. Specificly, fatigue overtook me. The more tired I became, the more drastic the treatment. Frankly, in the last 2 years I have gone thr… Continue
Posted on October 6, 2009 at 10:33am — 8 Comments
Comment Wall (4 comments)
- At 7:17am on October 9, 2009,
3sisters said… - Welcome Sister Ruste Jill!
Glad that we have connected, and are making our Lupus survivor chain stronger. Look forward to getting to know you and wishing you a great weekend, Kim
- At 3:45pm on October 8, 2009,
cookie said… - Thanks for the add Jill! have a sweet and blessed day!
- At 10:20am on October 7, 2009,
Maria said…
- What a beautiful page! I can't help but feel better just stopping by here~ wishing you a great day today and welcome to Ardent!
- At 10:45pm on October 5, 2009,
Angie said…
Welcome!
Get started by reading important pages.
Begin blogging your "passionate thoughts" right away!
Your blogs, your discussions, your videos, etc. are the content that will grow this website and community.
Angie
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