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Ellen S
- Female
- Iddy-biddy town, Missouri
- United States
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Ellen S's Page
Profile Information
- Member classification:
- Patient
- Patient Diagnosis:
- Lupus, Other
- If 'Other' name below:
- Grave's, Dystonia, Pernicious anemia, Migraine, Raynaud's, Chronic Cluster headaches
- Diagnosis Date:
- January 1, 1980
- Symptoms/Secondary Conditions:
- Joint Pain, Osteoporosis, Acid-Reflux/GERD, Chronic Constipation/IBS, Candiniasis/Thrush, Rashes, Chronic Fatigue, Vertigo, Brain Fog, Aphasia, Pleurosy, Other
- If 'Other' name below:
- Dystonia, Migraine and other Headache conditions, Raynaud's, vitamin deficiencies,
- Mobility status:
- Walk without assistance
- What is your racial ancestry?
- Caucasian/European Descent
- Family Status:
- Married
- Employment Status:
- Part-time
- Disability Status:
- Never applied
- In relationship to disease, how important is spirituality?
- I believe spirituality is important component of overall health/healing, I believe spiritual methods can cure when traditional medicine fails, I am religious participating member of organized religious institution
- Faith/Religion/Philosophy
- Christianity
- Have you or loved one experianced life threatening event due to disease or complication (eg. medication).
- Yes
- Please share a brief account of the life-threatening event. (Your answer is optional, but it is greatly appreciated!)
- Extrapyramidal reaction to medication followed by brain swelling and posturing.
- What are your Musings? Share some of your passionate thoughts! Your intellectual pursuits,professions and obsessions...
- You don't stop fighting when you get tired, you stop fighting when the gorilla gets tired.
"I will love the light for it shows me the way, yet I will endure the darkness because it shows me the stars." ~Og Mandino
- Share whatever you like...
- I hope this will be a place where members can feel free to respectfully express the myriad of emotions that result from Lupus, including both the pain and loss, but also the joy and even a touch of humor, without fear.
- Link us to your Websites, Blogs and Social Networking Profiles
- http://community.wegohealth.com/profiles/blog/list?user=2dd5v4e9sav3c
Ellen S's Blog
Intracranial Hypertension, Pseudotumor Cerebri - Journal?
Intracranial hypertension - the definition:
*Intra - inside
*Cranial - the skull
*Hyper - too much
*Tension - pressure
*Intracranial hypertension is the condition that results in increased pressure of the fluid that surrounds the brain and spina… Continue
Posted on September 2, 2009 at 3:22pm —
Power tools for Twitter users - Free webinar!
"Twitter Power Tools for Health Activists*" is the second in a series of webinars designed to help you make the most of your Twitter account. It is scheduled to take place Wednesday, June 3rd at Noon Eastern Time.
During this 45 minute presentation, WEGO Health will give you a guided tour of some of the most useful third party twitter applications to help you save time, reach more tweeps, and tak… Continue
Posted on May 30, 2009 at 6:00pm — 1 Comment
Twitter for health activists - a free webinar!
We all know that Twitter is taking the web by storm. In fact there are now over 6 million users on Twitter. Whether you're a Twitter veteran or simply a curious outsider, as a Health Activist you have the unique opportunity to use Twitter to further connect, s… Continue
Posted on April 4, 2009 at 11:30pm — 2 Comments
Lupus - a wolf in sheep's clothing
Lupus, "the wolf", is a disease often resulting in Migraine and other headache disorders.
When living my early years in Oregon, spending time in the wilderness, I happened upon wolves in the wild. I've looked at them in curiosity and excitement, but never fright. For the most part, wolves would prefer not to be around people... not to be observed. I never looked at a wolf as something to be afraid of. Perhaps t… Continue
Posted on January 22, 2009 at 5:06pm — 1 Comment
"T-Reg Mary" and her gift of life
Posted on January 22, 2009 at 4:30pm — 1 Comment
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Have a wonderful and pain free weekend, Ellen!Tuesday Comments - Myspace Comments
Myspace Layouts - Host Images
I'm sharing this awesome Easter message video link with my fellow Lupies. Just copy and paste into your browser ;)
http://www.crazywebsite.com/Pg-Online-Funny-Videos/Carpenter-Easter-Message-Video-1.html
Easter is almost here! Have a great weekend.
Wishing you well, Kim
More Comment Graphics
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I'm so glad that you like the Lupus image! Isn't cool how the Internet unites us all together!
Wishing you well! Gentle Hugs, Kim
No, I'm not at all overwhelmed at the amount of estrogen flowing thru this site! As I've always said, having lupus has given me the opportunity to meet with all those beautiful sisters I never had!
As for the headaches, well it has mainly been due to spending too much time under flouro lighting - strange that I can take all the heat and sunshine on a bicycle - but flouro lighting without any natural sunlight makes me feel ill.
And as for Facebook... I just haven't had the time. With work, websites, blogs and all the other stuff, I thought I'd wait until I finally get this book of mine published.
Best Wishes... Geoff.
I'm still figuring out maneuvering here - sorry I missed this. I'll look for you on FB, too~
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