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Angie
- Female
- Memphis, TN
- United States
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Ardent Cerebrations: Musings of a Lupus Survivor! The Life
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Angie's Discussions
Foods that better our health and lesson symptoms REPOST from Cookie
3 Replies
Started this discussion. Last reply by Barb Jun 12.
Mood Altering Psychtropic Drugs | What Do You Fear?
1 Reply
Started this discussion. Last reply by Angie Feb 4.
Give us your questions and topic interests.
1 Reply
Started this discussion. Last reply by Angie Jan 21.
Angie's Groups
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The Spirit
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The Mind
7 members
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Blogmaster
7 members
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Headache and Migraine
5 members
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The Body
9 members
Angie::Founder
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Latest Activity
ImmuPharma PLC: Encouraging Final Phase IIb Results Seen with LUPUZOR(TM) in Systemic Lupus Erythematosus ~ Greatest Benefits Seen in Patients with Moderate to Severe Systemic Lupus Erythematosus ~
LONDON, Nov 19, 2009 (BUSINESS WIRE) -- ImmuPharma…
I couldn't have said it better than Maria. A decade ago I was angry when doctors went 2 years before dx my SLE. Now I realize they just had very little knowledge themselves. I am going through similar scenario now with the NPSLE/APS problems. Slowly…
great. im about to dnload pdf to my PDA. need some read in these waiting rooms.
Thanks for posting here, also.
Profile Information
- Member classification:
- Patient
- Patient Diagnosis:
- Lupus, Fibromyalgia, Antiphospholipid Syndrome
- Diagnosis Date:
- May 1, 1995
- Symptoms/Secondary Conditions:
- Joint Pain, TMJ, Depression/Anxiety, Acid-Reflux/GERD, Chronic Constipation/IBS, Candiniasis/Thrush, Shingles, Prednisone Stria, Cushing's Syndrome(moon-face), Chronic Fatigue, Siezures, Vertigo, Neuropschiatric Deficits, Aphasia, DVT, Hemolytic Anemia/Thrombocytopenia
- If 'Other' name below:
- carpel tunnel, ADHD, kidney stones
- Mobility status:
- Use walker
- What is your racial ancestry?
- African Descent, Caucasian/European Descent, Native American
- Family Status:
- Single Parent
- Employment Status:
- Not employed
- Disability Status:
- Approved for SSD or SSI
- In relationship to disease, how important is spirituality?
- I believe spirituality is important component of overall health/healing, I believe spiritual methods can cure when traditional medicine fails
- Faith/Religion/Philosophy
- Christianity
- Have you or loved one experianced life threatening event due to disease or complication (eg. medication).
- Yes
- Please share a brief account of the life-threatening event. (Your answer is optional, but it is greatly appreciated!)
- Here's my most recent anecdote of survival. Having given up ambitions of a career in medicine to live on disability benefits for the last decade, I was so excited to be in remission and starting a new job in June 2004. My dreams were defered again by a very sudden and aggressive attack with hemolytic anemia reducing my blood cell counts to 10% and shutting down my pancreas and liver. I narrowly escaped death. I contribute my survival to my faith in God and his grace to allow me to live in order to to raise my teenage son, who has no one but me.
Once the crisis was over, I was completely paralized by the muscle atrophy of weeks of immobility in the hospital bed. Once home I quickly rid myself of walker and potty feeling euphoric from the high doses of IV steroids. Before the completion of a 6-month course of chemotherapy Cytoxin, I developed shingles in two quadrants of my face and relentless neuropathic pain. The side-effect of swollen feet kept me out of shoes and caused DVTs in both legs to be dangerously overlooked. A Greenfield filter was implanted to reduce the potential for blood clots to travel silently upstream causing pulmonary embolism and death. Before I could rid myself of the home nurse and port-a-cath, I was back in ICU with life threatening septiciemia, a systemic infection of my blood thats often the cause of death for lupus and cancer patients.
- What are your Musings? Share some of your passionate thoughts! Your intellectual pursuits,professions and obsessions...
- I love movies, especially avant garde, independent and classic cinema. I'm also a political news junkie. I also enjoy theology and history. Bedridden throughout 2005, I spent everyday reading the entire bible comparing different versions with the Hebrew and Greek text. Of course, I love the internet! I am obsessed with Wikipedia.
- Share whatever you like...
- I'm just a few classes short of a Computer Information Systems - Web Development degree. Developing a custom design for this network allowed me combine 3 goals: therapy for my neurological deficits, awareness for my disease, as well as a project to sharpen my professional skills.
- Link us to your Websites, Blogs and Social Networking Profiles
- http://alupussurvivor.blogspot.com
- Add link
- http://www.wearelupus.org/ardent1
Follow My Daily Cerebrations...
Ardent Cerebrations: Musings of a Lupus Survivor!
Founder's WebsiteAngie's Blog
ImmuPharma PLC: Encouraging Results Seen with LUPUZOR(TM) in SLE
ImmuPharma PLC: Encouraging Final Phase IIb Results Seen with LUPUZOR(TM) in Systemic Lupus Erythematosus ~ Greatest Benefits Seen in Patients with Moderate to Severe Systemic Lupus Erythematosus ~
LONDON, Nov 19, 2009 (BUSINESS WIRE) -- ImmuPharma PLC (LSE:IMM) the specialist discovery and development pharmaceutical company is pleased to announce today the final results from a Phase IIb trial of LUPUZOR(TM) in active patients with Systemic Lupus Erythematosus (SLE). Lupuzor(TM) administ… Continue
LONDON, Nov 19, 2009 (BUSINESS WIRE) -- ImmuPharma PLC (LSE:IMM) the specialist discovery and development pharmaceutical company is pleased to announce today the final results from a Phase IIb trial of LUPUZOR(TM) in active patients with Systemic Lupus Erythematosus (SLE). Lupuzor(TM) administ… Continue
Posted on November 29, 2009 at 5:00pm —
GSK and HGS Press Release: Successful Second Phase 3 Trial for Lupus Drug Benlysta
GlaxoSmithKline and Human Genome Sciences announce positive results in second of two phase 3 trials of Benlysta in systemic lupus erythematosus
- Benlysta (belimumab) 10 mg/kg plus standard of care met its primary efficacy endpoint by achieving a statistically significant improvement in patient response rate versus placebo plus standard of care at Week 52 in BLISS-76
- Primary efficacy endpoint met in two pivotal Phase 3 trials, as
Posted on November 2, 2009 at 1:28pm —
Have you taken Clonazepam or Klonopin? Did it help you?
ACCORDING TO THIS SNIPPET FROM WIKIPEDIA, KLONOPIN IS INDICATED FOR MANY OF CURRENT MY PROBLEMS. LOSING COVERAGE BACK IN 2004 DIDN'T KILL ME BUT UNDERMINED QUALITY OF MY LIFE. AT $60-90 A MONTH I COULDN'T AFFORD MAINTAIN USAGE. LIKE ME MANY LUPUS/MS PATIENTS HAVE USED IT WITH SOME SUCCESS FOR FOR MANY OF THE INDICATIONS BELOW. I AM HOPING SPLURGING ON A MONTHS SUPPLY MIGHT HELP ME GET THROUGH THIS STRESSFUL RELOCATION. RLS AND ANXIETY HAVE BEEN BACK. EVEN WHEN I DO FAKK ASLEEP, IT NEVER LAST… Continue
Posted on September 18, 2009 at 10:00pm — 1 Comment
Bittersweet Milestone in this Crazy Life...
I am having a hard time today. A mixture of hope for a more secure future as well as tears for giving up what I always considered as my greatest blessing: my dream home. Yesterday I finalized paperwork to put house up for sale as well as sent of application for subsidized apartment near my best friend in Kingsport, TN. My 17 year old heavy metal rock guitar playing bandanna wearing son is totally unhappy about moving away from his friends and band mates and going to small conservative town that'… Continue
Posted on August 18, 2009 at 11:00pm —
A Letter to Normals from a Person With Fibromyalgia/Chronic Pain
I'm reposting this from my FaceBook friend Melissa Hazlett Flicks Notes
This is an adaptation of a piece written by Bek Oberin. I found it on a Fibromyalgia message board. It kind of says it all, I think....
A Letter to Normals from a Person With Fibromyalgia/Chronic Pain
Having Fibromyalgia/Chronic Pain means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about fibromyalgia/chronic pai… Continue
This is an adaptation of a piece written by Bek Oberin. I found it on a Fibromyalgia message board. It kind of says it all, I think....
A Letter to Normals from a Person With Fibromyalgia/Chronic Pain
Having Fibromyalgia/Chronic Pain means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about fibromyalgia/chronic pai… Continue
Posted on August 8, 2009 at 3:57pm —
Angie's Photos
Awareness & Logos
Added February 1, 2009 at 3:08am
Christmas 2008
Added December 28, 2008 at 9:05pm
Angie's Videos
Comment Wall (47 comments)
- At 11:41am on November 10, 2009,
Lauren aka mrsbigmama said…
Christian Glitter by www.christianglitter.com
- At 11:51am on November 3, 2009,
cookie said… 
- At 10:17am on August 6, 2009,
Margaret Auchampaugh said… - Hi Angie, A wonderful site here. I have to head to hospital...bloodwork, but when I get back I'll have fun going through site!!! TY for the welcome. Margaret (Peggy)
- At 2:25pm on July 27, 2009,
Wally Sosa said…
- Thanks so much for the welcome!
- At 12:51pm on June 25, 2009,
APSFA said… - Thanks. I needed to change it up some and make it a little more personal with a little more look of APS.
- At 6:20am on June 13, 2009,
wrightrs said… - I'm glad we follow each other at all the sites too !!! I go to so many sites it hard to keep up at times. I'm going thought the process of getting my own power chair now. So many stores don't have them. It's hard for me to get use to staying home so much. Next week I go to a Physical Therapist for a wheel chair assessment. After that, they come and inspect my house.
I will probably not be around for a few days. I have to send my Laptop to HP to be fixed. I might send it today. It will be hard to be without my laptop. It's my only contact with the outside word most days. Talk to you when I get it back.
- At 2:49am on June 13, 2009,
Geoff Thomas said…
- Hi Angie and thanks for the comment re: my radio interview.
Sorry I haven't been in touch for a while... with floods, moving house and not having an internet connection for two weeks, things have been somewhat hectic!
Best wishes as aways from Australia
Geoff
- At 12:09am on June 12, 2009,
Barb said… - Dang you busted me... that comment is from a Native American Chief but it has wracked my brain for years to find or remember which chief to give proper credit. When the application insited I give a quote that is all I coud think of. I love this quote and it proves itself true all the time.
Thanks for the warm welcome...
- At 7:24pm on June 9, 2009,
Renee said…
- Angie,
For the most part I have been away from this site & the others more than I care to; with more than my fair share of things on my plate. But, I wanted to drop by to my greatest inspiration & let you know you are never forgotten! I hope as things slow down in my life, accomplishments are achieved, and next surgeries are over that I can become more actively involved!
You are in my thoughts!
Much Love,
Renee
- At 10:22pm on June 2, 2009,
cookie said…
- Thanks angie and Im glad you have your son to look out for you lol. I feel that i sleep to much and can't help it. I use to take care of the elderly and watched them doze off sitting down. And now I find myself in the same position. Oh well I do the same as you when i feel good I charge towards everything and get it done. I guess we are all in the same position. Hope your recovery is a quick one. God bless you!
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