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Faces of APS - The APSFA Needs YOUR Help!
The APSFA is looking for people to submit their photos for "The Faces of APS". Details in the pdf linked below. Please help us bring awareness to this disease to main stream media!
Deadline: January 4, 201…
Good idea. Hope you like the newsletter. Can you also post this on your fan page. Thanks!
great. im about to dnload pdf to my PDA. need some read in these waiting rooms.
The FALL/WINTER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol15FallWinter2009.pdf
The next volume will be coming out in late…
Our EXCLUSIVE holiday snowflake ornament is now available for purchase in our Cafepress store. This is the 4th in the series and each one is unique! We picked the snowflake to be the symbol on this special ornament because like there are no two sn…
We are excited to announce the arrival of our 4th Annual Holiday Giving Tree!
This tree holds a special meaning for the members of the APS Foundation of America, Inc and the community it serves. Since the Giving Tree has been such a big success i…
No problem. People need to understand that young, fit, healthy men can get APS too.
Thanks for posting here, also.
`Wipeout' TV show player with rare condition dies
Thu Nov 12, 7:03 pm ET
LOS ANGELES – A contestant who was hospitalized after competing briefly on the game show "Wipeout" died two weeks later of a stroke apparently caused by a rare condition, hi…
Can you post this on your fan page on FB. FB likes to say I am spamming and I can't afford to lose my account.
This is encouraging. Maybe it will be sooner that that doctors, nurses and healthcare know what APS IS when I tell them I have it. I just made appointment with rheumy thats listed on APSFA list. He was recommended by facebook friend, Debbie from Kin…
Thanks, I was hoping you'd post this on ACMLS too.
Profile Information
- Member classification:
- Patient
- Patient Diagnosis:
- Lupus, Antiphospholipid Syndrome
- If 'Other' name below:
- Tina
- Diagnosis Date:
- August 1, 2002
- Symptoms/Secondary Conditions:
- Joint Pain, TMJ, Osteoporosis, Depression/Anxiety, Acid-Reflux/GERD, Chronic Constipation/IBS, Rashes, Chronic Fatigue, Vertigo, DVT, Stroke/Embolism, Headache/Migraine, Raynaud's Syndrome
- Mobility status:
- Walk without assistance
- What is your racial ancestry?
- Caucasian/European Descent
- Family Status:
- Single
- Employment Status:
- Not employed
- Disability Status:
- Approved for SSD or SSI
- In relationship to disease, how important is spirituality?
- I am spiritual but not religious
- Faith/Religion/Philosophy
- Other
- Have you or loved one experianced life threatening event due to disease or complication (eg. medication).
- Yes
- What are your Musings? Share some of your passionate thoughts! Your intellectual pursuits,professions and obsessions...
- Living life to the fullest!
- Share whatever you like...
- :)
- Link us to your Websites, Blogs and Social Networking Profiles
- http://www.apsfa.org
- Add link
- http://www.apsforum.com
- Add link
- http://www.youtube.com/APSFA
13th International Congress on Antiphospholipid Antibodies
13th International Congress on Antiphospholipid Antibodies
"Antiphospholipid by the Beach"
When: April 13-16, 2010
Four days of the most up-to-date evidence-based medicine and state-of-the-art scientific sessions on Antiphospholipid Antibodies and the Antiphospholipid syndrome.
Participants included: rheumatologists, hematologists, OB-Gyn specialists, neurologists, dermatologists, cardiologists, pathologists, researchers, laboratory scientists and clinicians dealing with Antiphospholipid Syndrome, SLE and other related autoimmune diseases.
There will be a patient session on Wednesday April 14, 2010 from 5:00-6:30PM CT
URL for more information on costs, hotels & location here: http://www.utmb.edu/apla2010
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, APLA, conference, CME, international
"Antiphospholipid by the Beach"
When: April 13-16, 2010
Four days of the most up-to-date evidence-based medicine and state-of-the-art scientific sessions on Antiphospholipid Antibodies and the Antiphospholipid syndrome.
Participants included: rheumatologists, hematologists, OB-Gyn specialists, neurologists, dermatologists, cardiologists, pathologists, researchers, laboratory scientists and clinicians dealing with Antiphospholipid Syndrome, SLE and other related autoimmune diseases.
There will be a patient session on Wednesday April 14, 2010 from 5:00-6:30PM CT
URL for more information on costs, hotels & location here: http://www.utmb.edu/apla2010
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, APLA, conference, CME, international
APSFA's Photos
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APSFA's Blog
Faces of APS - The APSFA Needs YOUR Help!
Faces of APS - The APSFA Needs YOUR Help!
The APSFA is looking for people to submit their photos for "The Faces of APS". Details in the pdf linked below. Please help us bring awareness to this disease to main stream media!
Deadline: January 4, 2010
http://www.apsfa.org/docs/Faces%20of%20APS.pdf
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot… Continue
The APSFA is looking for people to submit their photos for "The Faces of APS". Details in the pdf linked below. Please help us bring awareness to this disease to main stream media!
Deadline: January 4, 2010
http://www.apsfa.org/docs/Faces%20of%20APS.pdf
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot… Continue
Posted on December 6, 2009 at 1:15pm —
FALL/WINTER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is Available
The FALL/WINTER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol15FallWinter2009.pdf
The next volume will be coming out in late Winter, early Spring, 2010.
Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that… Continue
The next volume will be coming out in late Winter, early Spring, 2010.
Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that… Continue
Posted on November 21, 2009 at 12:58pm — 2 Comments
*Exclusive* 2009 APSFA Holiday Ornament
Our EXCLUSIVE holiday snowflake ornament is now available for purchase in our Cafepress store. This is the 4th in the series and each one is unique! We picked the snowflake to be the symbol on this special ornament because like there are no two snowflakes that are alike, no two APS patients are alike!
Purchase this ornament:… Continue
Posted on November 16, 2009 at 9:12pm —
2009 APSFA Giving Tree
We are excited to announce the arrival of our 4th Annual Holiday Giving Tree!
This tree holds a special meaning for the members of the APS Foundation of America, Inc and the community it serves. Since the Giving Tree has been such a big success in the past, we've made it an annual tradition.
How the tree works: When you make a donation using the chart below the tree, you get to chose an ornament or… Continue
Posted on November 15, 2009 at 12:24pm —
`Wipeout' TV show player with rare condition dies
`Wipeout' TV show player with rare condition dies
Thu Nov 12, 7:03 pm ET
LOS ANGELES – A contestant who was hospitalized after competing briefly on the game show "Wipeout" died two weeks later of a stroke apparently caused by a rare condition, his father said.
Tom Sparks, 33, was participating in th… Continue
Thu Nov 12, 7:03 pm ET
LOS ANGELES – A contestant who was hospitalized after competing briefly on the game show "Wipeout" died two weeks later of a stroke apparently caused by a rare condition, his father said.
Tom Sparks, 33, was participating in th… Continue
Posted on November 13, 2009 at 4:57pm — 2 Comments
Comment Wall (3 comments)
- At 4:12pm on June 24, 2009,
Angie said…
- love your new profile page. hope alls well
- At 6:41pm on June 9, 2009,
cookie said… - Hello Just stopping by to welcome you to angies lupus site. Feel at home and share your thoughts and topics on what you allready know and maybe someone else still has to learn. We can conquer this together. We wish you health and wellness.
- At 6:08pm on June 9, 2009,
Angie said…
Welcome!
Get started by reading important pages.
Begin blogging your "passionate thoughts" right away!
Your blogs, your discussions, your videos, etc. are the content that will grow this website and community.
Angie
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