Ardent Cerebrations: Musings of Lupus Survivors!

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Forum of lupus bloggers & groups express passionate thoughts on disease, body, mind & spirit. Info Hub to share resources, articles & media.

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LupusMCTD.com Courage Award

The Lupus MCTD Foundation of America has nominated you for our Courage Award.
courage award

The Courage Award is being given to you for your public contributions in raising awareness, as well as your demonstration to other's as a fellow patient. Lupus Warriors are people who have overcome many challenges, who have walked through experiences having gained a renewed spirit and determination to thrive. Have gained the spirit of endurance through their difficulties and have in turn help other patients. You exemplify the inner strength of a Lupus Warrior and an empathy that makes your service work to other's rooted in compassion. Sincerely, The Lupus MCTD Foundation Team

 

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Survivors

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  • Sandra Wood
  • Laura Morrison
  • Pinar
  • MediciGlobal
  • Bert kenselaar
  • Suanne Schulman
  • Mark A Green
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  • tyshimahgibbs@yahoo.com
  • MARY MILLS
  • Lory Nosworthy
  • Heather Robertson
  • Vikki
  • Joselyn Miller
  • Lola Nicachica
  • Sharon
  • Laura Hope Johnson
  • desiree.williams747
  • Donna Verhoek
  • Theresa
  • Erika Hunter
  • Valinda Mitchell
  • Karen Patch
  • Lupus Adventurer

Lupus Bloggers

Maria

The Sound of Silence

Posted by Maria on August 13, 2011 at 10:50pm 1 Comment

Even though I've been gone longer here than the last three months, I still want to share a little bit about what has been on my mind lately and the difficult emotions that show up on the familiar turf of life with chronic illness.

My August 6th post on my blog/website~ share any of your own stories with me here.  I know my loss isn't the only one this community has ever experienced.

Theresa

My bookcase...third shelf down from top.  Minds Run Amok! Lately, I have been suffering more than I like.  I am sure that statement not only sounds a bit odd, but it most likely sounds a…

Posted by Theresa on July 5, 2011 at 7:56pm 0 Comments



My bookcase...third shelf down from top. 

Minds Run Amok!

Lately, I have been suffering more than I like. 
I am sure that statement not only sounds a bit odd, but it most likely sounds a little “woe is me” as well.  Odd, in the obvious…who really likes to suffer at all – and “woe is me” in that…well, get over it Sunshine, we all seem to be…
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APSFA

Spring / Summer 2011 volume of our quarterly newsletter, "Antiphospho...What??"

Posted by APSFA on June 19, 2011 at 10:10pm 0 Comments

The Spring / Summer 2011 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol21SprSum11.pdf
Theresa

Breathe

Posted by Theresa on June 15, 2011 at 12:55pm 2 Comments

Artwork by me. Inspired by my dear friend. 
I didn't always know how to breathe. In fact, prior to 2005, I did not realize that breathing was even something one paid attention to. I simply left the job up to my autonomic nervous system. Autonomic...automatic...autopilot...what's the difference? 
And then I met Jeana.
Jeana came into my life at one of those points when everything else seemed to be leaving. I had just taken a new job in St. Paul…
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The Salon

Introduce Yourself!

This salon is for new members to introduce themselves and be welcomed by fellow survivors. Please tell us how you found out about this community. Who invited you? Did you find us through our Tweets?

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The Salon

Start general discussions that are not categorized by any of the network themed salons: The Disease, The Body, The Mind, or The Spirit. ( health care policy, social security for example) There is a separate forum forum for introductions.

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The Disease

"The Disease" focuses on medical facts and scientific information specific to lupus, fibromyalgia, and APS. Join The Disease Group to collaborate on Network projects focused on this theme.

8 discussions

The Body

"The Body" focuses on non-pharmaceutical management of the symptoms of lupus, fibromyalgia and APS. Join The Body Group to collaborate on Network projects focused on this theme.

4 discussions

The Mind

"The Mind" focuses on the survivors intellect, our identy outside the physical.

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Sandra Wood

Jan 9
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Sandra Wood updated their profile Jan 2
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Angie left a comment for yaosangjian
Welcome! Get started by going to our Salon's Introduce Yourself! thread. Tell us about yourself and meet newest members. Be sure you have read the important pages below. The Mission | FAQs | TOU - Terms of Use | New Members Begin blogging…
Oct 28, 2011
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Angie left a comment for Sandra Wood
Welcome! Get started by going to our Salon's Introduce Yourself! thread. Tell us about yourself and meet newest members. Be sure you have read the important pages below. The Mission | FAQs | TOU - Terms of Use | New Members Begin blogging…
Oct 28, 2011
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Angie left a comment for imani o
Welcome! Get started by going to our Salon's Introduce Yourself! thread. Tell us about yourself and meet newest members. Be sure you have read the important pages below. The Mission | FAQs | TOU - Terms of Use | New Members Begin blogging…
Oct 28, 2011
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imani o and Sandra Wood joined Ardent Cerebrations: Musings of Lupus Survivors! Oct 28, 2011
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Welcome! Get started by going to our Salon's Introduce Yourself! thread. Tell us about yourself and meet newest members. Be sure you have read the important pages below. The Mission | FAQs | TOU - Terms of Use | New Members Begin blogging…
Sep 1, 2011
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Laura Morrison is now a member of Ardent Cerebrations: Musings of Lupus Survivors! Sep 1, 2011
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Angie updated their profile Aug 14, 2011
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Angie left a comment for Pinar
So happy you found us! I am curious, what were you searching for when you found this website? Your blog is very good! I have google translate plugin, since i often have international friends. I hope you will repost some of your articles…
Aug 14, 2011
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Angie left a comment for MediciGlobal
Hello Alicia! Thanks for joining our community. I hope you will use your personal blog to share information about cutaneous lupus and the clinical trials that are available. Blogs, Salon, video post are fed to our ACMLS twitter and Facebook…
Aug 14, 2011
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Angie left a comment for Pinar
Welcome! Get started by going to our Salon's Introduce Yourself! thread. Tell us about yourself and meet newest members. Be sure you have read the important pages below. The Mission | FAQs | TOU - Terms of Use | New Members Begin blogging…
Aug 14, 2011
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Angie left a comment for MediciGlobal
Welcome! Get started by going to our Salon's Introduce Yourself! thread. Tell us about yourself and meet newest members. Be sure you have read the important pages below. The Mission | FAQs | TOU - Terms of Use | New Members Begin blogging…
Aug 14, 2011
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Angie left a comment for Bert kenselaar
Welcome! Get started by going to our Salon's Introduce Yourself! thread. Tell us about yourself and meet newest members. Be sure you have read the important pages below. The Mission | FAQs | TOU - Terms of Use | New Members Begin blogging…
Aug 14, 2011
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Pinar, MediciGlobal and Bert kenselaar joined Ardent Cerebrations: Musings of Lupus Survivors! Aug 14, 2011
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Angie commented on Maria's blog post 'The Sound of Silence'
Maria, thanks for sharing such an intimate experience with us. So frequently we fellow lupies or friends in general get busy with our own illness and the chaos that comes with it then lose touch with each other only to find out we have…
Aug 14, 2011
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The Sound of Silence

Even though I've been gone longer here than the last three months, I still want to share a little bit about what has been on my mind lately and the difficult emotions that show up on the familiar turf of life with chronic illness.My August 6th post on my blog/website~ share any of your own stories with me here.  I know my loss isn't the only one this community has ever experienced.See More
Blog post by Maria Aug 14, 2011
1 Comment
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Maria replied to Maria's discussion 'Anyone use POM or other nutritional product for lupus?'
Although I haven't heard about it causing pain, I know too much of a good thing can be potential trouble, too.  At least, that's what happens when I get into my dark chocolate.  lol  Sorry for the late response and thanks…
Aug 14, 2011
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Oh, I know...30 lashes with a wet noodle for not being here for so-o-o-o-o long. I hope everyone is finding some joy in their days!
Status posted by Maria Aug 14, 2011
1 Comment
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Ellen S replied to Angie's discussion 'Has anyone used Hiprex, antimicrobial medication to prevent chronic UTIs?'
I haven't heard of it, but will surely be looking it up. Question- are chronic uti's a lipid symptom or the result of meds?
Jul 30, 2011
 
 
 

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